Transforming grief into action. Uplifting stories. Advancing change.
Project Butterfly is a community-based program that looks at the circumstances surrounding pregnancy and infant losses to improve care. We gather information from various sources, including hospitals, social service programs, and most importantly, families who are open to sharing their stories.
Losing a baby is one of the most painful experiences, and every family deserves to have their experience honored with care. Our work is centered on uplifting your story and affirming that it matters.
Every story is a call to action, every review a step toward equity. Together, we’re creating a future where every baby can thrive, and every family is supported with compassion and care.
What We Do
The Allegheny County Fetal-Infant Mortality Review (Project Butterfly) exists to reduce fetal and infant deaths by examining the circumstances surrounding pregnancy and infant loss, identifying systemic gaps, and driving compassionate, evidence-based solutions. Through collaboration across healthcare, social services, and community partners, family storytelling, and community engagement, we work to improve services, resources, and outcomes for women, infants, and families—especially those most impacted by inequities.
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Interested in partnering with us? Fill out this short form.
Want to support the initiative? Help fund compassionate care and donate today!
What You Can Do
​Share your story! Click here to learn more.
Sharing your story with Project Butterfly is a powerful act of love, remembrance, and advocacy. When you open your heart and your experience to us, you help shine a light on the realities families face during pregnancy and infant loss—realities that too often go unheard. Your voice helps guide meaningful change in hospitals, programs, and systems, ensuring that care becomes more compassionate, equitable, and responsive for every family. Most importantly, your story matters. It honors your baby, validates your journey, and helps build a future where no parent walks this path alone. By sharing, you help transform grief into hope and create a safer, more supportive world for all families.
Who We Are
Project Butterfly is powered by a network of dedicated partners who share a commitment to honoring families and improving care. Together, Healthy Start, UPMC Children’s Hospital, the Allegheny County Health Department’s Office of Family and Child Health, Allegheny Health Network, St. Clair Hospital, Heritage Valley Health System, Allegheny Reproductive Health Center, The Midwife Center for Birth & Women’s Health, First Steps & Beyond, Pittsburgh Bereavement Doulas, and numerous community partners work hand in hand to understand the circumstances surrounding pregnancy and infant loss. By combining medical expertise, community support, and family voices, this partnership strengthens the quality of care, expands compassionate resources, and ensures that every family’s experience guides meaningful change.
