About Us
Transforming grief into action. Uplifting stories. Advancing change.
Mission Statement
The Allegheny County Fetal-Infant Mortality Review (Project Butterfly) exists to reduce fetal and infant deaths by examining the circumstances surrounding pregnancy and infant loss, identifying systemic gaps, and driving compassionate, evidence-based solutions. Through collaboration across healthcare, social services, and community partners, family storytelling, and community engagement, we work to improve services, resources, and outcomes for women, infants, and families—especially those most impacted by inequities.
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Vision Statement
A future where every pregnancy is supported, every birth is safe, and every family—regardless of race or circumstance—has equitable access to care, resources, and respect. We envision a community where systemic barriers are dismantled, Black births are celebrated, and loss is met with empathy, healing, and meaningful change.
Focus Areas
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Education and Advocacy
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Centering Black Births
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Action & Implementation
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Trauma Informed Care
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Blood Pressure
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Fetal Movement
Our History
Project Butterfly is part of a national FIMR movement reshaping how communities understand and respond to infant loss.
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The Community-Based Approach to Infant Mortality through the Fetal Infant Mortality Review Program (FIMR) is a national initiative established over three decades ago as a collaborative effort between the American College of Obstetricians and Gynecologists (ACOG) and the federal Maternal and Child Health Bureau (MCHB), part of the Health Resources and Services Administration (HRSA) under the U.S. Department of Health and Human Services. FIMR teams review fetal and infant deaths, identify contributing factors, and recommend community-based interventions to prevent future losses.
As of 2024, there are over 150 active FIMR programs operating in 23 states, Washington, D.C., Puerto Rico, and the Commonwealth of the Northern Mariana Islands. In Pennsylvania, there are currently two local FIMR programs, one in Allegheny County and one in Philadelphia, highlighting a continued opportunity to expand this approach across the state.
Our Team
Our Partners
